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Resources & Support

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At WakeMed, we're committed to educating our patients about their illness or disease, including signs and symptoms, resources, treatment options and their plan of care. These resources will help patients and their family members better understand stroke and deal with its impact.

WakeMed Stroke Support

Triangle Support Groups

WakeMed Resources for Patients & Families Affected by Stroke

Rehabilitation Resources

These comprehensive resources give patients and families an overview of what to expect before, during and after stroke rehabilitation .

Community Stroke Support

Community Education

The WakeMed Stroke Team attends events in Wake County’s communities with high incidence of stroke to provide education on stroke risk factors, stroke symptoms and the importance of calling 911 for transport to the emergency department.

Community Resources

This is a brief list of available resources. If you need further information on additional resources, please contact your clinical case manager.

Advocacy and Information  

  • Americans with Disabilities Act: Provides information on disability rights laws.
  • Community Partnerships: Provides services to people with disabilities of all ages. Programs include preschool services, brain injury support services, supported employment and family education. 919-781-3616
  • Family Support Network: Provides services to families of children with developmental disabilities, chronic illnesses or other special needs. 919-662-4600
  • North Carolina Human Relations Commission: Provides information regarding fair housing and housing discrimination concerns. 919-789-5930
  • North Carolina Industrial Commission: Provides information on workers’ compensation. 919-807-2500
  • Resources for Seniors: Provides information on home and community-based resources so disabled and senior adults can maximize their independence for as long as possible while remaining in their home. 919-872-7933
  • Triangle Disability Advocates: Assists families in the Social Security application process. 919-350-8539

Community Programs

  • Community Alternatives Program for Disabled Adults: An alternative to nursing home care for adults who require a high level of care and who meet strict financial criteria. 919-872-7933
  • Independent Living, Raleigh Office: Offers a variety of services, including home modifications, personal assistance services and counseling, to people with disabilities that meet certain financial criteria. Available statewide. 919-715-0543
  • Meals on Wheels of Wake County: Home-delivered meals for disabled and homebound seniors. 919-833-1749
  • North Carolina Assistive Technology Program, Raleigh Office: Provides assistive technology services and information through demonstrations, loans and training. Available statewide. 919-850-2787
  • Partnerships in Assistive Technology-Assistive Technology Exchange Post: Buy or sell assistive technology. Available statewide. 919-872-2298 
  • Vocational Rehabilitation, Raleigh Office Promotes employment and independence for people with disabilities. Available statewide. 919-733-7807

Counseling/Mental Health Services

  • Catholic Social Services: Provides counseling on a sliding fee scale. 919-790-8533
  • Hopeline: 24-hour/seven-day-a-week confidential telephone counseling. 919-231-4525
  • Interact: Crisis intervention, counseling and shelter for victims of domestic violence. 919-828-7501
  • Jewish Family Services: Provides counseling on a sliding fee scale. 919-676-2200
  • Triangle Family Services: Provides counseling on a sliding fee scale. 919-821-0790
  • Wake County Human Services/Mental Health: Emergency and non-emergency mental health services. Walk-ins and some scheduled appointments available. Accepts some insurance and sliding fee scale. 919-250-3133

Emergency Response System

Financial 

  • Basic Needs Ministry: Maintains list of free or low-cost resources (including medical, food, appliances, clothing and furniture). 919-661-6565
  • Safety Net Medical Providers: Provides information on doctors and dentists who accept Medicaid, listings of health centers, free medical clinics and more.
  • Salvation Army: Provides financial assistance, clothing and a food pantry. 919-834-6733
  • Urban Ministries: Provides financial assistance, food and transitional housing. 919-834-4707
  • Wake County Human Services: County office where applications for Medicaid and food stamps are taken. 919-212-7541
  • Wake County Human Services Emergency Assistance Service Intake: Provides emergency financial assistance with utilities, rent, prescriptions and other services. 919-212-7000

Home Modifications and Accessibility

  • Center for Independent Living: Home modifications and assistive equipment. 919-715-0543
  • Center for Universal Design: Assists with planning for modifications in homes. Will talk with callers about needs and can send information packet. 800-647-6777
  • Imagine: Accepts donated mobility and other durable medical equipment, and has donated equipment available at no charge. 919-779-3487
  • Resources for Seniors Housing and Home Improvement: Home adaptations including wheelchair ramps and grab bars, and minor home repair related to health and safety. For homeowners 55 and older, fees are based on income. 919-872-7933
  • Ramp and other product companies: Multiple companies rent or sell a variety of home modification supplies.

Medical

  • Alliance Medical Ministry Clinic: Medical care on sliding fee scale for eligible working families without health insurance. 919-250-3320
  • Doctor Choice: Visit our Find a Doctor module. 
  • Open Door Clinic: Free medical care by appointment for those with no insurance. 919-832-0820
  • Wake Health Services: Provides general medical care and social work services. Insurance accepted, sliding fee scale. 919-833-3111

Medication, Prescription Drugs, and Medicare Part D

  • Filling in the Gaps (FIGS Program): Provides prescription and medical supplies assistance. 919-212-7000 or 919-834-4707
  • Medicare: Provides information to help select a Medicare prescription drug plan. 800-633-4227
  • Medicine Assistance Tool: Offers a single point of access to more than 275 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies.
  • NCRx: Drug assistance plan to help low-income seniors with Medicare Part D premiums. 888-488-6279
  • NeedyMeds.com: Provides information about patient assistance programs that provide no-cost prescription medications to eligible participants.
  • RX Assist.org: Helps individuals access pharmaceutical assistance programs. 877-844-8442
  • SHIIP: Answers questions and counsels Medicare beneficiaries about Medicare supplements, Medicare Advantage, Medicare prescription plans, etc. 855-408-1212

Miscellaneous 

Private Duty Attendants/Aides

Social Security

  • Social Security Administration: Provides information on Social Security, Medicare, Social Security disability benefits and SSI. 800-772-1213

Support Organizations

Transportation

  • Accessible Raleigh Transportation (ART): Raleigh residents with a physical or mental disability that makes it impossible to drive a car and/or use the city bus system are eligible for ART. ART provides subsidized door-to-door transportation service through participating taxi companies within Raleigh’s city limits and within three-quarters of a mile of CAT fixed routes. 919-890-3459
  • Capital Area Transit - City Bus Service: Discounted rates are available for senior citizens and people with disabilities. 919-828-7228
  • Center for Volunteer Caregiving: Volunteer-based transportation, limited availability. 919-460-0567
  • Durham Area Transit Authority: Discounted rates are available for senior citizens and persons with disabilities. 919-485-RIDE
  • DATA ACCESS: Provides curb-to-curb transportation service for eligible riders to all locations within the city of Durham and to any location outside the city that is three-quarters of a mile of any fixed-route service operated by DATA. DATA ACCESS provides service during the same hours and on the same days as the regular fixed-route service. Must submit application. 919-560-1551
  • Stalls Medical Supply: New, used and rental wheelchair accessible vans. 800-627-0732
  • TRACS: Public van service for Wake county residents traveling between certain zones (call to determine whether your trip is a covered zone); wheelchair-accessible vans available. 919-212-7005, option 3
  • TRACS Edcap: Program provides priority in scheduling transportation to seniors and those who are disabled.
  • Van Products: Sells wheelchair-accessible vehicles, lifts, ramps, hand controls and many other products. 919-878-7110
  • Wake Coordinated Transportation: Clients who are Medicaid eligible can access free transportation to and from medical appointments – advanced notice required. 919-212-7005

Wheelchair Van Transportation Companies

Impact of Stroke

Patients and families may experience a range of emotions that can include disbelief, anger, guilt, depression, isolation, panic and hope. These emotions are normal and an expected part of the process. Our compassionate rehabilitation team helps patients in the areas daily impact.

Activities of Daily Living

Activities of daily living include work, school, leisure and self-care activities, such as grooming, bathing, dressing and toileting. Stroke survivors may either be totally dependent upon others to care for them, or they may be able to resume aspects of self-care. Regaining independence in these areas and supporting the brain’s neuroplasticity is a focus of post-stroke therapy and rehabilitation. 

Neuroplasticity is the brain’s ability to adapt to changes by developing new connections between neurons. Early rehabilitation after stroke, especially with physical, occupational and speech therapy, supports this amazing ability!  

Leisure Skills

Physical and cognitive changes may make it hard to participate in leisure activities. WakeMed therapeutic recreation specialists help patients find new ways to enjoy hobbies and leisure.

Psychosocial

Early in recovery, patients often cannot understand what has happened to them. They may be very fearful or angry and have no control over their emotions. As patients recover, they may begin to understand their situation, which can put them at risk for depression or other adjustment difficulties. The injured brain can often heal, and the changes can be inspiring. Along with the hope brought by recovery is the balance of acceptance of more permanent changes.

If you or your loved ones are feeling depressed or hopeless, or if you need extra support following a stroke, let your primary care provider know. Counselor support can make all the difference. You may also contact WakeMed Neuropsychology.

Loved Ones

A stroke affects everyone who knows and cares about the patient. All members of the family should ensure adequate rest, good nutrition and a return to a normal routines as soon as possible. 

Young children can be distressed, confused and upset. If you’re not sure how to explain a stroke to a child, or if you have questions about how to prepare the child to visit the patient, we can arrange a consultation with one of WakeMed’s child life specialists.

Neuroplasticity

Neuroplasticity is the brain’s ability to adapt to changes by developing new connections between neurons. Early rehabilitation after stroke, especially with physical, occupational and speech therapy, supports this amazing ability!  

A stroke can affect many areas of functioning. Our rehabilitation treatment team addresses all major functional areas with individual patients.

Medical Management

  • Breathing: Patients can have difficulty breathing after a stroke, so a tracheotomy tube may need to be placed in the neck to help with breathing. Even when patients can once again breathe on their own, the tube may remain in place to help clear secretions from the trachea. The ability to produce an audible voice is temporarily affected by the presence of this tube.
  • Swallowing: During the course of rehab, a patient may have an objective study performed to ensure the least restrictive diet and to prevent pneumonia. Many individuals with stroke have trouble swallowing safely (dysphagia). Food may be chopped or pureed, and liquids may be thinned or thickened. In some cases, a feeding tube must be inserted through the nose to give liquid nutrition. When swallowing problems are severe and likely to last for a while, a gastrostomy feeding tube can be surgically placed in the stomach. This allows liquid nutrition to be given in large amounts several times a day instead of continuously dripped in, and is often more comfortable for the patient. Generally, this tube can be removed once swallowing improves.
  • Seizures: When the brain is injured, it becomes more sensitive to developing seizures. Seizures are caused by abnormal electrical discharges in the brain. Symptoms may vary depending on the part of the brain that is affected, but seizures often cause unusual sensations, uncontrollable muscle spasms and even loss of consciousness. Medications can be used to stop and prevent seizures.
  • Spasticity: Spasticity is a condition in which muscles are continuously contracted. This abnormal increase in muscle tone results from a faulty signal from the brain to the muscles. The stiffness and tightness of the muscles can interfere with movement, speech, and the quality of walking. The degree of spasticity can vary from mild muscle stiffness to severe, painful and uncontrollable muscle spasms. Treatment depends on the individual’s circumstances, but could include medications and stretching exercises.

Cognition

Cognition is often adversely affected by stroke, and includes things such as attention, memory, language, visual-spatial abilities, alertness, and executive skills. Some patients can be confused and restless, and have problems with insight, irritability, restlessness, poor attention, poor memory and difficulty solving everyday problems.

Cognitive changes with strokes are more likely seen with someone who has had a cerebrovascular accident on the right side of the brain. Cognitive deficits can vary from mild to severe or profound, and often show improvement as recovery progresses. Some areas of cognition may be more impaired than others.

As patients improve, they often begin to participate more meaningfully in therapies and other activities.

Cognitive deficits can sometimes be subtle. They may still include mild memory deficits, and difficulties in planning and organizing day-to-day functioning, particularly in complex activities. Rehabilitation efforts at this level are focused on teaching the patient strategies to help in these areas.

Communication

Problems communicating can range from mild to profound. Individuals with the most severe strokes are unable to communicate at first. They may sometimes have their eyes open, and appear to be awake, but may not be able to speak or respond. Having difficulty speaking or understanding words is called aphasia, and this is usually associated with strokes on the left side of the brain.

Some individuals can follow simple directions and may be able to talk using simple words or gestures, but may have difficulty finding the right words to say. Words said may not always make sense.

Patients can also experience dysarthria, in which weakness of the face, lips, tongue and larynx (voice box) can cause speech to be slurred and unintelligible.

Apraxia

Apraxia can also be caused by a stroke. This is a motor planning disorder that can cause the patient to know what word they want to say, but have difficulty planning the speech sounds. They may appear to be searching for a word with long delays in initiating speech.

Our speech pathologists evaluate and recommend treatment for communication and swallowing problems. Generally, as the patient improves, communication skills become more accurate.

Mobility

Mobility is about movement, whether it’s going from laying down to sitting up, walking to the bathroom, or wheeling a wheelchair down the hall. In order to move the body, the brain must coordinate balance, strength, and motor control.

Mobility deficits in stroke patients are most commonly addressed by physical therapists in rehabilitation. At WakeMed, we use a variety of approaches to facilitate mobility, and we encourage the patient to use the affected side of the body as much as possible to retrain those muscles and pathways in the brain.

Areas of function that can affect mobility in a person with a stroke are:

  • Balance: Allows upright posture without falling over
  • Strength: The amount of power that the muscles have
  • Coordination: The smooth movement of multiple body parts in harmony
  • Sensation:  Whether hot or cold, or sharp or dull
  • Proprioception: Tells the body where it is in space
  • Tone: An increased resistance to movement, which can increase with laughing, coughing, sneezing, infection, fever, or impaction
  • Range of motion: Orthopaedic injuries, increased muscle tone, or changes in motor control can reduce the patient’s ability to maintain joint flexibility
  • Posture: The ability to sit up or stand, including head position
  • Motor control: A combination of strength, balance, coordination, and sensation to produce purposeful, controlled movement.
  • Motor planning: The selection of the correct motor plan, including starting, continuing and stopping a desired movement