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Patient Information

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Useful Websites

ENDOCRINE:

MAGIC Foundation

  • provides information & support to patients and families with various endocrine disorders, including growth hormone deficiency, constitutional delay, congenital adrenal hyperplasia (CAH), panhypopituitarism, and precocious puberty www.magicfoundation.org

American Thyroid Association (ATA)

  • provides information to patients and families about thyroid disorders, medication, and treatment, including congenital hypothyroidism, acquired hypothyroidism, goiter, hyperthyroidism, Grave’s disease, and thyroid nodule. Contains materials in English & Spanish. www.thyroid.org

Turner Syndrome Society of US www.turnersyndrome.org

Prader-Willi Syndrome Association of US https://www.pwsausa.org

Intersex Society of North America

  • provides information & support to patients and families with various intersex disorders, including CAH, Klinefelter syndrome, androgen insensitivity, micropenis, and gonadal dysgenesis www.isna.org

National Organization for Rare Disorders (NORD)

  • provides information & support to patients and families with very uncommon disorders of all origins (not just endocrine in nature) www.rarediseases.org

DIABETES:

Juvenile Diabetes Resource Foundation (JDRF)

  • provides information & support to patients and families with Type 1 diabetes; also promotes research for prevention and alternate therapy options www.jdrf.org
    • Local Chapter: triangle.jdrf.org

American Diabetes Association (ADA)

  • provides a wide range of resources for individuals with diabetes. Most information on this website, however, is related to Type 2 diabetes. www.diabetes.org

Barbara Davis Center

  • Located in Colorado, the Barbara Davis Center leads the way with developing education materials for children with Type 1 diabetes (their Pink Panther series is used at many diabetes programs throughout the country). www.barbaradaviscenter.org

Children With Diabetes

Clinical Trials.gov

  • national registry site for all clinical trials that are being conducted throughout the world. Try typing in “Type 1 Diabetes” and “USA” to help narrow your search to those being conducted nationally. www.clinicaltrials.gov

TrialNet

  • TrialNet is dedicated to research studies aimed at preventing and early treatment of Type 1 diabetes. Our office is a TrialNet site for some of these studies. www.diabetestrialnet.org

Novo Nordisk

  • one of the primary makers and distributors for insulin (NovoLog and Levemir). The website has drug information as well as patient education materials. www.novonordisk-us.com

Lilly

  • the other primary maker and distributor for insulin (HumaLog and Lantus). www.lillydiabetes.com
    • www.spoonful.com/type1 is a collaborative website between Lilly and Disney that has support and educational materials primarily geared towards children and teenagers with Type 1 diabetes.

Calorie King

  • This online database has access to nutrition information for hundreds of foods and chain restaurants. www.calorieking.com

Mobile Apps

  • MyChart (free & paid versions; access future appointments, diabetes careplan, labs; request refills; send message to the endocrinology clinic)
  • GoMeals (free; powered by CalorieKing)
  • Glucose Buddy (free & paid versions; tracks BGs)
  • Diabetes Pal (free; tracks BGs), Glucagon (free; how to give Glucagon)
  • My Diabetes (free, Android; tracks BGs and gives reminders)
  • bant (free, iPhone; tracks BGs & share via email or social media)
  • mySugr & mySugr Junior (free & paid versions; tracks BGs & set goals)